Karen Ball

The Sturge-Weber Foundation is an international nonprofit organization dedicated to improving the quality of life, care, and research for individuals affected by Sturge-Weber syndrome and related conditions such as port-wine birthmarks and Klippel-Trenaunay syndrome. The private company is based in Mount Freedom, NJ. The foundation collaborates with clinical partners, researchers, and multidisciplinary care centers to provide comprehensive care and advance scientific understanding. It offers resources for patients, families, and professionals, including educational materials, medical forms, video libraries, scholarships, and research participation opportunities. The organization addresses medical management, neurological and ophthalmological issues, mental health support, and quality of life challenges, and organizes events to foster community engagement and education. The CEO of the company is Karen Ball.